THALASSEMIA N ME

The Answer may very well be YES.

IN SINGAPORE

Thalassaemia Society (Singapore) was formed by a group of parents, patients and volunteers to meet the following objectives:

• Create public awareness and disseminate relevant and the latest medical information relating to  Thalassaemia.

• Provide community support and social interaction among Thalassaemia patients and their families.

• Provide financial aid to needy families and referral of social and welfare services.

Thalassaemia Society ( Singapore ) was officially registered with the Registry Of Societies in December 2003 and is registered as a Charity with the Commissioner Of Charities.

Contact

Address

Thalassaemia Society (Singapore) c/o National Thalassaemia Registry

Level 7, Children's Tower, KK Women's & Children's Hospital

100 Bukit Timah Road, Singapore 229899

Tel: +65 96722886

Fax: +65 96725764

General Enquiries: info@thalsociety.org

Official Website:  http://www.thalsociety.org/

Club Rainbow (Singapore) The charity currently supports more than 500 children, youths and their families.

They provide a range of free services including a volunteer-based befriender network and counselling, free tuition at home, at our Rainbow Family Care Centre on weekends and for children warded at the KK Women’s and Children’s Hospital and National University Hospital, we also offer bedside tuition.

Established in 1992, Club Rainbow (Singapore) is a registered charity committed to helping children and youths suffering from a range of chronic and potentially life-threatening illnesses.

Contact

Office Address

Rainbow Family Care Centre
Blk 538 Upper Cross Street #05-263/269
Singapore 050538

Club Rainbow Hotline: (65) 63771789
                             Fax: (65) 62718189

Opening Hours: Mondays to Fridays – 9am to 5pm

Email:contact@clubrainbow.org                                                                                                                                             Official Website: http://www.clubrainbow.org/

Promisedland Community Services - Lifeblood Centre started with the purpose of helping Thalassaemia and Cancer patients. The service started with the hope of easing the financial burden of these patients and their immediate families. When patients are diagnosed with cancer, they usually go through treatment processes which eventually hinder them from continuing their jobs. They will then have to pay medical bills for the treatments. Cancer is not incurable, but it is a long and slow process which requires mental and financial support to the patients and their families.

Lifeblood Centre hopes  to do whatever we can to allow the patients and their families have hope in battling the illness. Many cancer patient families undergo great mental stress. We can only do so much by helping them feel that there are people in society that bears their problems with them and  by helping the patients have a positive mindset in the recovery process.

Ferrying Service

Through the Lifeblood Service, cancer patients facing financial difficulties receive free ferry services to and from their homes to the hospitals where they get their treatments. Patients are usually weak and weary after their treatment sessions and it is uncomfortable for them to use public transportation. Utilizing taxis is more convenient, but it is expensive and is an added burden to the hefty healthcare costs that they are already facing.

Food Rations

Through this service, families facing financial difficulties receive free food rations on a monthly basis.

Medical Subsidies

Similarly, medical subsidies are handed out to applicants who are deemed to be facing heavy financial burdens. These subsidies are given to patients for their medical supplies. We are able to find patients through partner hospitals.

Contact

Address

Promisedland Community Services
Block 151 Bukit Batok Street 11 #04-250, Singapore 650151

Tel:+65-65669 9570  

Fax: +65-6560 3256

                                                                                                                                                             Opening Hours: Mondays to Fridays – 9am to 6pm

Official Website: http://promisedland.org.sg/

Haemophilia Society of Singapore was first formed and registered on 25 June 1985. It was started by a group consisting of people with haemophilia, parents, health care providers and some interested professionals. It obtained its approval from the Commissioner of Charities on 17, Sept 1986. The society is an affiliated member of the National Council of Social Services (NCSS) and a member of the World Federation of Haemophilia (WFH). It is, however, not under the umbrella of The Community Chest of Singapore.

The society was formed with the objective of looking after the welfare of people with haemophilia and their families through giving help and support. It provides a venue for people with similar problems and needs to come together to share and exchange experiences and to give each other moral support. Over the years, the society has held many seminars and talks regularly to impart knowledge and promote understanding of this medical disorder. These seminars also serve to keep all abreast of the advances and development in the field of haemophilia. The society also acts as a link between the patients and the medical caregivers in promoting understanding and fostering good relationship.

The society has set up several Haemophilia Endowment Funds in the National University Hospital, the Singapore General Hospital and the Kandang Kerbau Women and Children’s Hospital with an aim to subsidise the medical treatment of its members. The society has to raise its own fund to be able to achieve this objective. The Society, therefore depends very much on the generosity of well-wishers and kind donors to support its work .All donations to the Society are exempted from Singapore Income Tax as the Society was granted tax exemption status on 26 June 1997 under the Health Endowment Fund Scheme.

A committee of volunteers currently runs the society and meets once a month. There is no salaried staff in the society.

Subsidies

The most pressing need most haemophiliacs face is the ability to afford factor 8/9. Factor 8/9 is the drug haemophiliacs need to stop bleeding when injury occurs. For persons with severe haemophilia, they may need to take this drug regularly because a bruise can even occur with a minor bump.

A bottle of factor 8 costs slightly above $100 on average. A bruise on the ankle joint can easily expend 6 bottles of factor 8. Therefore, the Society commits much of its time to raising funds from various avenues to provide its own subsidies in addition to the Governments’. When you are a member of the Society, you are entitled to subsidies from the Society for your factor 8/9.

With effect from June 1,2006, a cap has been placed on the amount each member can claim per month for their factor products from SGH, NUH + KKCH. For children aged 12 years and below, the maximum claim per month is $400.00. For those aged 13 years and above, the maximum claim per month is $800.00.

Contact

Mail

For Postal Mail: Farrer Road Post Office, P O Box 273, Singapore 912810 For Registered Mails only: Blk 704, Bedok Reservior Rd, #01-3622, Singapore 470704 For all mail correspondences, please address it to "The Haemophilia Society of Singapore".

Tel: Dr Gan Kim Loong: 6449 0289

         Dr Tan Hooi Hwa: 6235 8166

Email: haemophilia.sg@gmail.com

Official Website: http://haemophilia.org.sg/

COUNTRIES OUTSIDE SINGAPORE

Do try to contact Thalassemia International Federation (TIF) to see whether they can help.

Official Website: http://www.thalassaemia.org.cy/

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