THALASSEMIA N ME

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Nancy
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Female
52 years old

aisha
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Female
About Me




Derek Trevor Rowswell
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Male
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Nangial.Khan
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Male
34 years old
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Nivethan Trust
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34 years old

observer
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Male
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arthurbank
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Male
About Me

Hi: I am an Emeritus Profesor of Medicine at Columbia University who has written a book on thalassemia, "Turninig Blood Red: The Fight for Life in Cooley's Anemia." It is available on Amazon, Barnes and Noble, Borders and World Scientific Publishing.

I am also a co-author of the first successful clinical trial of hemoglobin gene therapy for thalassemia published September 16th, 2010 in Nature magazine. A 21-year old man who previously needed monthly blood transfusions has not needed a transfuion in the past two years.

I have a website at:http:// arthurbank.com. Come visit me.



ali raza
Member
Male
34 years old
About Me

i am a student of MSc(final) microbiology from university of karachi.

i am involved in a thalassemia prevention program as a genetic counselor



masooma rahman
Member
Female
60 years old
About Me

I'm, health care provider (expert in blood transfusion),  working in ASHA- Thalasemia Centre which is for thalassemic patients of Bangladesh.

Like to contact with the people working for thalassemia and the people who are living with thalassemia.



nall_74
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Male

tedi
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Female
41 years old
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Alex Zander
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Male
34 years old
About Me

Nothing special....



Zoaib
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Male
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Mummy Angah
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Female
52 years old

Mariam M
Member
Female
About Me

A positive thinker !!!!! :D



Rudimar
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Male
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raul
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Female

AdlyShuib
Member
Male
About Me

Living with life partner which is Thalassaemic, open up my mind to new things. Sharing and giving some care to others are among others. Glad to be here.... :):):)



Manal
Member
Female

Shirley
Member
Female
71 years old
About Me

My Name is Shirley Cammilleri-Huntoon I am the president of Cooley' S Anemia of Monroe county. It is in Rochester, N.Y. United States. MY first husband died at the age of 48 from thalassemia and my only child died from it  at the age of 34, Lisa was her name, she started a website called thalsite. com which is still up. I have been raising money for thalassemia for 17 years by running a weekly bingo game every Monday. A lot of this money went to research exjade. I am very proud of the work I have done, My daughter asked me to keep  it going from her death bed. I am re-married now to Terry Huntoon. I run a daycare out of my house. I have 3 dogs, a cat and a large fish tank to keep me busy. Thalassemia used to be an Italian and Greek disease,Now it is all over the world. My daughter was transfused from the age of 2. She worked for the Police Dept. up until her death. She got hepC from a transfusion when she was 20. I think she would still be here if it were not for that. I am glad to see another site for thalassemia (Cooley's Anemia) Good Luck to you. Shirley Cammilleri-HUntoon


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