THALASSEMIA N ME

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BONE MARROW (HAEMATOPOIETIC STEM CELL) TRANSPLANT IN THALASSEMIA MAJOR PATIENTS

Posted by Goh Chun Hui (Jack Goh) on December 12, 2012 at 4:30 PM Comments comments (0)


The only cure available for Thalassemia Major Patients currently is a Blood Stem Cell transplant from a donor who shares the same tissue type.


But unfortunately, most patients are not a suitable candidate. As they do not have a suitable sibling, a parents match or an unrelated donor to offer them the chance of life.


...
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SHARING EXPERIENCE OF COPING WITH DESFERAL INFUSION

Posted by Goh Chun Hui (Jack Goh) on May 17, 2012 at 12:50 PM Comments comments (0)


EXCUSE PATIENTS GIVE TO SKIP/AVOID DESFERAL INFUSION


 

SWITCHING DAY 



Tomorrow, I will have my Desferal Infusion.                               &#...

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THALASSEMIA: HOPE OR HOPELESS?

Posted by Goh Chun Hui (Jack Goh) on March 18, 2012 at 7:55 AM Comments comments (4)


Even now living as a Thalassemia Major Patient, I still consider myself lucky. Having the world-class healthcare in Singapore. Receiving proper consult from hematology doctor, having all the necessary treatment required like Laboratory Blood Test, Blood transfusion, Mri Safety Screening, Chelation/Chelaters, Supplements and Medications when needed. Not only that, medifund is there to help these patients who can't afford any of their medical treatment...

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THALASSEMIA MAJOR

Posted by Goh Chun Hui (Jack Goh) on January 19, 2012 at 8:10 AM Comments comments (5)


Thalassemia major is the most severe form of Thalassemia. A person with Thalassemia major will require a lifetime of monthly blood transfusions. Patients usually have sign & symptoms and get diagnose within few months or early years of life.



Some Thalassemia intermedia patients might become Thalassemia major after needing to require more offen regular blood transfusions.The only ...

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THALASSEMIA INTERMEDIA

Posted by Goh Chun Hui (Jack Goh) on January 15, 2012 at 9:15 AM Comments comments (3)


Thalassemia intermedia is a condition that is more severe than Thalassemia minor but less severe than Thalassemia major. The different between Thalassemia intermedia and Thalassemia major is that Thalassemia intermedia patients require lesser amount of blood or longer duration time between each blood transfusion section.



Thalassemia intermedia is more dif...

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THALASSEMIA MINOR

Posted by Goh Chun Hui (Jack Goh) on January 13, 2012 at 10:45 AM Comments comments (1)


Thalassemia minor is consider an common condition around the world. A person with Thalassemia is unable to produce normal functioning haemoglobin in the blood.


However, Thalassemia minor patients normally live a normal life like anyone else. Although some patients are advise to have a higher iron content in their daily diet and also other supplements like folic acid. Fortunately Thalassemia mino...

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IS THALASSEMIA MAJOR PATIENTS SUITABLE FOR LASIK EYE SURGERY ?

Posted by Goh Chun Hui (Jack Goh) on October 3, 2011 at 10:55 AM Comments comments (9)


There are patient who are good candidate for LASIK eye surgery, and I am one of them. Just got my vision corrected recently through VISX Custom LASIK (Microkeratome) as my degree for both eyes are within the moderate range -4.00.



Whether you're a good candidate for LASIK eye surgery, you will need to undergo an initial or baseline evaluation by your eye doctor to determine if you are...

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LIVING WITH THALASSEMIA ( MY OWN PROSPECTIVE )

Posted by Goh Chun Hui (Jack Goh) on May 30, 2011 at 6:35 AM Comments comments (6)


Hey everyone I am here to share with you guys on the topic Living with Thalassemia, on a patients prospective or at least of my own point of view.



Living with Thalassemia is always the toughest to me when I first having to accept myself as a patients. Receiving and having treatment for a lifetime which is painful both physically and emotionally. And that imposes a heavy financialand ...

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PREVENTING OSTEOPOROSIS IN OLDER THALASSEMIA MAJOR PATIENTS

Posted by Goh Chun Hui (Jack Goh) on April 23, 2011 at 10:45 AM Comments comments (0)


As you might know Osteoporosis is always a major issue/concern in older Thalassemia Patients. Of course everyone is concern about the condition "Osteoporosis",don't get me wrong. But Thalassemia Patients should take extra care in preventing it, as they would know. Iron chelater Desferal is known to removes

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SYMPTOMS AND TREATMENT FOR HYPOTHYROIDISM (LOW/LITTLE HORMONES)

Posted by Goh Chun Hui (Jack Goh) on March 26, 2011 at 10:45 AM Comments comments (0)


Hey guys below is some common symptoms of hypothyroidism. 


  • Fatigue; exhaustion
  • Feeling run down and sluggish
  • Depression
  • Difficulty concentrating 
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