THALASSEMIA N ME

Subtitle

WEBSITE POLL RESULTS

WEBSITE POLL 1 RESULT - WHAT OF THESE CHELATERS ARE YOU HAVING ?

TOTAL - 11 VOTES

EXJADE ONCE A DAY -  4 VOTES
DESFERAL + FERRIPROX (L1) - 2 VOTES
DESFERAL ( DEFEROXAMINE ) - 0 VOTE
FERRIPROX ( L1 ) - 3 VOTES
FERRIPROX (L1) + EXJADE - 0 VOTE
EXJADE + DESFERAL - 1 VOTE
NONE OF THE ABOVE - 1 VOTE
OTHERS - 0 VOTE

WEBSITE POLL 2 RESULT - WHAT THALASSEMIA CONDITION ARE YOU HAVING ?

TOTAL - 11 VOTES

THALASSEMIA MINOR 1 VOTE 9%
THALASSEMIA INTERMEDIA 0 VOTE 0%
NONE OF THE ABOVE 0 VOTE 0%
WHO CARES 1 VOTE 9%
ALPHA THALASSEMIA MAJOR 2 VOTES 18%
BETA THALASSEMIA MAJOR 7 VOTES 64%

 

WEBSITE POLL 3 RESULT - WHAT BLOOD GROUP ARE YOU HAVING ?

TOTAL - 54 VOTES

O POSITIVE + 43% ( 23 VOTES)
A NEGATIVE - 2% ( 1 VOTE )
NONE OF THESE 0% ( 0 VOTE )
A POSITIVE + 20% ( 11 VOTES )
B POSITIVE + 20% ( 11 VOTES )
AB POSITIVE + 4% ( 2 VOTES )
B NEGATIVE - 0% ( 0 VOTE )
0 NEGATIVE - 4% ( 2 VOTE )
AB NEGATIVE - 0% ( 0 VOTE )
WHAT'S THAT 7% ( 4 VOTES )

 

WEBSITE POLL 4 RESULT -WHAT'S YOUR ESTIMATED HB LEVEL ?

TOTAL - 26 VOTES

BETWEEN 9 - 10 38% (10 VOTES)
BETWEEN 10 - 11 15% (4 VOTES)
BETWEEN ABOVE 11 8% (2 VOTES)
NOT VERY SURE 0% (0 VOTE)
BELOW 7 4% (1 VOTE)
BETWEEN 7 -8 12% (3 VOTES)
BETWEEM 8 - 9 23% (6 VOTES)
WHAT THE HELL 0% (0 VOTE)

 

WEBSITE POLL 5 RESULT - WHAT'S YOUR LATEST FERRITIN LEVEL RANGE ?

TOTAL - 16 VOTES

BELOW 500 13% (2 votes)
BETWEEN 501 - 1000 13% (2 votes)
BETWEEN 1001 - 2000 44% (7 votes)
HUH WHAT'S THAT 0% (0 votes)
BETWEEN 2001 - 5000 6% (1 votes)
ABOVE 5000 25% (4 votes)

 

WEBSITE POLL 6 RESULT - HOW OFFEN DO YOU COME FOR BLOOD TRANSFUSION ?

TOTAL -  20 VOTES

EVERY 2 WEEKS FOR 2 UNITS OF BLOOD 20% (4 votes)
EVERY 3 WEEKS FOR 2 UNITS OF BLOOD 35% (7 votes)
EVERY 3 WEEKS FOR 3 UNITS OF BLOOD 0% (0 vote)
EVERY 4 WEEKS FOR 2 UNITS OF BLOOD 10% (2 votes)
EVERY 4 WEEKS FOR 3 UNITS OF BLOOD 5% (1 vote)
EVERY 5 WEEKS FOR 2 UNITS OF BLOOD 10% (2 votes)
EVERY 5 WEEKS FOR 3 UNITS FOR BLOOD 0% (0 vote)
EVERY 2-3 MONTHS 10% (2 votes)
EVERY WEEK FOR 1-2 UNITS OF BLOOD 0% (0 vote)
I AM CURE FROM BONE MARROW TRANSPLANT 10% (2 votes)

 

WEBSITE POLL 7 RESULT - WHAT AGE DO YOU START HAVING BLOOD TRANSFUSION ?

TOTAL - 31 VOTES

1 Month - 3 Months 13% (4 votes)
4 Months - 6 Months 23% (7 votes)
7 Months - 11 Months 19% (6 votes)
1 - 2 Years Old 16% (5 votes)
2 - 5 Years Old 6% (2 votes)
6 - 10 Years Old 13% (4 votes)
After 10 Years Old 0% (0 vote)
I Am Transfusion Free After BMT 10% (3 votes)

WEBSITE POLL 8 RESULT - WHAT AGE DO YOU START HAVING CHELATERS ?

TOTAL - 23 VOTES

1 - 3 Months 9% (2 votes)
4 - 6 Months 0% (0 vote)
7 - 11 Months 13% (3 votes)
1 - 2 Years Old 17% (4 votes)
2 -5 Years Old 9% (2 votes)
6 - 10 Years Old 26% (6 votes)
Above 11 Years Old 17% (4 votes)
Who the hell needs chelaters, I am cure. 9% (2 votes)

 

WEBSITE POLL 9 RESULT - WHAT'S THE FIRST THING YOU ARE GOING TO DO AFTER GETTING CURE WITH THALASSEMIA ?

TOTAL - 16 VOTES

Go wherever I want 6.25% (1 votes)
Go gym and keep myself fit 18.75% (3 votes)
Get rid of my desferal pump 18.75% (3 votes)
Get a full-time job 6.25% (1 votes)
Have fun 25% (4 votes)
Thanks god I have already cure through BMT 12.5% (2 votes)
Other: 12.5% (2 votes)

WEBSITE POLL 10 RESULT - HOW MANY MEMBERS IN YOUR FAMILY HAVE THALASSEMIA MAJOR ?

TOTAL - 31 VOTES        

One, just me myself. 45.16% (14 votes)
Two, me and one of my sibling. 19.35% (6 votes)
Guess what three, can you beileve it. 9.68% (3 votes)
I am cure from Thalassemia, but my sibling hasn't been cure. 0% (0 votes)
Others 25.81% (8 votes)

WEBSITE POLL 11 RESULT - WHAT'S THE OLDEST THALASSEMIA MAJOR PATIENTS YOU HAD MET OR CAME ACROSS ?

TOTAL - 22 VOTES

20 - 30 Years Old 27.27% (6 votes)
31 - 40 Years Old 31.82% (7 votes)
41 - 50 Years Old 4.55% (1 vote)
51 - 60 Years Old 13.64% (3 votes)
He is Legend already above 60 22.73% (5 votes)

WEBSITE POLL 12 RESULT - WILL YOU BE ATTENDING 2ND SINGAPORE THALASSAEMIA CONFERENCE 2011 2-4 SEPTEMBER?

TOTAL - 12 VOTES

Yes, I will. 33.33% (4 votes)
No, Not Coming. 16.67% (2 votes)
Maybe, Depends. 16.67% (2 votes)
I Hope, But Couldn't Come. 16.67% (2 votes)
Not Interested. 16.67% (2 votes)                                                        

WEBSITE POLL 13 RESULT - HOW MANY YEARS ARE YOU ON BLOOD TRANSFUSION?

TOTAL - 34 VOTES

2-5 YEARS 0%  (0 votes)  
6-10 YEARS 5.88%  (2 votes)  
11-15 YEARS 11.76%  (4 votes)  
OVER 15 YEARS 61.76%  (21 votes)  
I AM CURE NOW, I USED TO HAVE BLOOD TRANSFUSION 14.71%  (5 votes)

 

WEBSITE POLL 14 RESULT - HOW MANY YEARS ARE YOU ON CHELATERS?

TOTAL - 14 VOTES

LESS THAN A YEAR 28.57% (4 votes)
1 - 2 YEARS 0% (0 votes)
3 - 5 YEARS 14.29% (2 votes)
6 - 10 YEARS 7.14% (1 vote)
ABOVE 10 YEARS OLD 42.86% (6 votes)
I USED TO HAVE CHELATER, BUT I AM NOT USING IT ANYMORE 7.14% (1 vote)

WEBSITE POLL 15 RESULT - WHAT DO YOU HATE MOST BEING A THALASSEMIA MAJOR PATIENT?

TOTAL - 13 VOTES

Having to go for blood transfusion regularly 30.77% (4 votes)                                                                             Having to have desferal infusion every night 15.38% (2 votes)                                                                           Having to go for countless blood test 0% (0 vote)                                                                                               Having to take medication/supplements everyday 15.38% (2 votes)                                                                   Having to spend lots of time going for doctor appointment 0% (0 vote)                                                               Let's take it further, all of the above you have mention 38.46% (5 votes)

WEBSITE POLL 16 RESULT - WHICH TO YOU IS THE MOST PAINFUL PROCEDURE?

TOTAL - 8 VOTES

Withdraw blood for cross match 0% (0 vote)
Setting of plug for blood transfusion 12.5% (1 vote)
Having overnight desferal infusion 87.5% (7 votes)

WEBSITE POLL 17 RESULT - WHICH OF THE TWO WORDS WILL YOU PREFER MOST?

TOTAL - 13 VOTES

Thalassemia 53.85% (7 votes)
Thalassaemia 12.5% (5 votes)
Not sure 7.69% (1 vote) 

WEBSITE POLL 18 RESULT - WHAT'S YOUR 2012 NEW YEAR RESOLUTION, YOU DETERMINE TO DO?

TOTAL - 8 VOTES

Work Hard on Career 12.5% (1 vote)
Spend More Time with Family 0% (0 vote)
Spend more time Resting 0% (0 vote)
Earn more Money 25% (2 votes)
Travelling 0% (0 vote)
Focus on my Dream 25% (2 votes)
All of the above my friend 25% (2 votes)
Others, why don't you name them out 12.5% (1 vote)

WEBSITE POLL 19 RESULT - WHICH DEVICE DO YOU USED TO MONITOR IRON OVERLOAD IN YOUR COUNTRY

TOTAL - 10 VOTES

MRI 20% (2 votes)
FerriScan 30% (3 votes)
None 30% (3 votes)
Others 20% (2 votes)

WEBSITE POLL 20 RESULT - IF YOU HAD THE CHOICE, WILL YOU WANT TO LIVE FREE WITH THALASSEMIA OR DIE HARD WITHOUT THALASSEMIA ?

TOTAL - 4 VOTES

Live Free with Thalassemia (0 vote)
Die Hard without Thalassemia 25% (1 vote)
I can't tell 75% (3 votes)

WEBSITE POLL 21 RESULT - WHAT DO YOU DISLIKE MOST ABOUT HAVING DESFERAL INFUSION ?

TOTAL - 3 VOTES

Setting up for Desferal Infusion  33.33%  (1 vote)  
Injecting the needle, causing pain  0%  (0 vote)  
Carrying the Desferal Pump around for 8-10 hours  0%  (0 vote)  
Affecting sleeping quality  0%  (0 vote)  
Causing redness, swollening and pain after Desferal Infusion  33.33%  (1 vote)  
I can't tell, it's difficult to choose my friend  33.33%  (1 vote) 

WEBSITE POLL 22 RESULT - WILL YOU BE ATTENDING EVENT DURING WORLD THALASSEMIA DAY 2012

TOTAL -  6 VOTES

Yes 83.33% (5 votes)
No 0% (0 vote)
Not sure, have to see. 16.67% (1 vote)

 

WEBSITE POLL 23 RESULT - WHICH DAY DO YOU USUALLY COME FOR YOUR BLOOD TRANSFUSION?

TOTAL -  5 VOTES

Monday  20%  (1 vote)  
Tuesday  0%  (0 vote)  
Wednesday  0%  (0 vote)  
Thursday  40%  (2 votes)  
Friday 20%  (1 vote)
Saturday  0%  (0 vote)
Sunday 20%  (1 vote)
What transfusion, who say anything about Blood Transfusion 0%  (0 vote) 

WEBSITE POLL 24 RESULT - HOW MANY DAYS DO YOU HAVE YOUR DESFERAL INFUSION EACH WEEK?

TOTAL - 9 VOTES

One day  11.11%  (1 vote)  
Two days  11.11%  (1 vote)  
Three days  0%  (0 vote)
Four days  11.11%  (1 vote)
Five days  0%  (0 vote)    
Six days  11.11%  (1 vote)
Everyday, 7 Days.  22.22%  (2 votes)
I am not on Desferal Infusion friend 33.33%  (3 votes)

WEBSITE POLL 25 RESULT -WILL YOU SKIP YOUR DESFERAL INFUSION, WHEN YOU DON'T FEEL LIKE HAVING IT?

TOTAL - 8 VOTES

Yes, I will Skip.  37.5%  (3 votes)  
No, I wouldn't Skip  0%  (0 vote)  
It's Really Depends  50%  (4 votes)  
Why you want to know  12.5%  (1 vote)

WEBSITE POLL 26 RESULT -IF YOU ARE A THALASSEMIA MAJOR PATIENTS, HOW MANY HOURS ON AVERAGE DO YOU SLEEP EACH DAY?

TOTAL - 11 VOTES

Below 7 hours 27.27% (3 votes)
8 hours 18.18% (2 votes)
9 hours 27.27% (3 votes)
Over 10 hours 9.09% (1 votes)
I am not Thalassemia Major, I will have to skip this poll. 18.18% (2 votes)

WEBSITE POLL 27 RESULT -IF YOU ARE A THALASSEMIA MAJOR PATIENTS, DO YOU HAVE THYROID DISORDER CONDITION?

TOTAL - 6 VOTES

Yes 50%  (3 votes)  
No 33.33%  (2 votes)
That doesn't concern me 16.67%  (1 vote)

WEBSITE POLL 28 RESULT - WHAT'S THE LOWEST HEMOGLOBIN LEVEL, YOU HAD EVER ENCOUNTERED?

TOTAL - 10 VOTES

Below 4  30%  (3 votes)  
Between 4.1 - 5  30%  (3 votes)  
Between 5.1 - 6  10%  (1 votes)  
Between 6 - 7  10%  (1 vote)  
Above 7, friend.  20%  (2 votes)  
What the hell?  0%  (0 vote) 

WEBSITE POLL 29 RESULT - IF YOU'RE A THALASSEMIA MAJOR PATIENTS, ARE YOU TAKING HYDROXYUREA?

TOTAL - 13 VOTES

Yes  15.38%  (2 votes)  
No    30.77%  (4 votes)  
What's that dear ?  53.85%  (7 votes) 

WEBSITE POLL 30 RESULT - WILL YOU BE ATTENDING THALASSEMIA INTERNATIONAL FEDERATION WORLD CONGRESS 2013?

TOTAL - 7 VOTES

Yes      42.86% (3 votes)
Maybe 28.57% (2 votes)
Too early to decide friend 28.57% (2 votes)
No              0% (0 vote)

WEBSITE POLL 31 RESULT - WHAT TYPE OF EVENTS IN THE THALASSEMIA COMMUNITY, ARE YOU MORE LIKELY TO ATTEND?

TOTAL - 8 VOTES

Overseas trip 37.5% (3 votes)
Conference 25% (2 votes)
Blood donation event 25% (2 votes)
Running to support Thalassemia event 12.5% (1 vote)
Annual General Meeting 0% (0 vote)
Outdoor theme park event 0% (0 vote)
Not attending any of these 0% (0 vote)
None of these you mention 0% (0 vote)

WEBSITE POLL 32 RESULT - WILL YOU ABORT YOUR UNBORN BABY, IF YOU FIND OUT HE/SHE HAS THALASSEMIA MAJOR?

TOTAL - 17 VOTES

No 52.94% (9 votes)
Yes 47.06% (8 votes)

 

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  • finencial support

    I have one douther .she was a thalassemia patient. but i have no abilite her proper treatment . please help me .
  • WORLD THALASSEMIA DAY 2011

    HOPE EVERYONE WHO ARE HEALTHY AND ARE ABLE TO DONATE BLOOD TO GIVE A HAND TO HELP THALASSEMIA PATIENTS BY DONATING BLOOD TO SAVE A LIVE.

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