THIS WEBSITE IS BUILD TO SHARE WITH EVERYONE WHAT I HAD GONE THROUGH AS A THALASSEMIA MAJOR PATIENT. I WILL BE SHARING IT ON MY VIDEOS, BLOG POST, PODCAST, PHOTO AND MORE. HOPE TO LEARN FROM YOU GUYS TOO ON WHAT YOU HAD ENCOUNTER AS A THALASSEMIA PATIENT. HOPE TO STAY CONNECT WITH AS MANY PEOPLE AS POSSIBLE. PLEASE FEEL FREE TO CONTACT ME, WILL LOVE TO HEAR FROM YOU. HOPE YOU ENJOY VISITING MY SITE.
Personal website of a Thalassemia Major sufferer from this inherited blood disease, determined to live a better quality of life.
What is Thalassemia?
Many Diseases are caused by abnormalities in the blood. These abnormalities are categorised according to b part of the blood affected. There are diseases of the rell blood cells, white blood cells or coagulation diseases.
Thalassemia is also known as "Cooleys Anaemia" is an abnormal which is caused by abnormal gene. A person with Thalassemia is unable to produce normal functioning haemoglobin in the blood.
Haemoglobin is the oxygen-carrying component of the red blood cells. It consists of two different proteins, an alpha and a beta. If the body doesn't produce enough of either of these two proteins, the red blood cell do not form properly and cannot carry sufficient oxygen. The result is anemia that begins in early childhood and lasts throughout life. Since thalassemia is not a single disorder but a group of related disorders that affect the human body in similar ways, it is important to understand the differences between the various types of thalassemia.
In severe form of Thalassemia (known as Thalassemia Major), the person will require a lifetime monthly blood transfusions. This is a painful and traumatic treatment regime that imposes an enormous financial and emotional strain on the patient, and also on his or her family.