THALASSEMIA N ME

Subtitle

FAQ

Offen Question I am asked

  1. What is Thalassemia ?

    Many Diseases are caused by abnormalities in the blood. These abnormalities are categorised according to b part of the blood affected. There are diseases of the rell blood cells, white blood cells or coagulation diseases. Thalassemia is also known as "Cooleys Anaemia" is an abnormal which is caused by abnormal gene. A person with Thalassemia is unable to produce normal functioning haemoglobin in the blood. Haemoglobin is the oxygen-carrying component of the red blood cells. It consists of two different proteins, an alpha and a beta. If the body doesn't produce enough of either of these two proteins, the red blood cell do not form properly and cannot carry sufficient oxygen. The result is anemia that begins in early childhood and lasts throughout life. Since thalassemia is not a single disorder but a group of related disorders that affect the human body in similar ways, it is important to understand the differences between the various types of thalassemia. In severe form of Thalassemia (known as Thalassemia Major), the person will require a lifetime monthly blood transfusions.This is a painful and traumatic treatment regime that imposes an enormous financial and emotional strain on the patient, and also on his or her family.

  2. What Chelater are you using ?

    I am using only L1 Ferriprox currently, years back I am on Desferal Infusion follow by combination of both Desferal Infusion and L1 Ferriprox/Ferriprone.

  3. Can I replace taking Exjade by just drinking Green Tea ?

    Of course not. Green tea help in reduced/decrease of iron absorption from certain food. It's not an chelater, you still have to continue with your Exjade chelater to get rid of excess iron in your body.

  4. What is your Ferritin Level ?

    My Ferritin is somewhere around 800-900, which is still between the safe range below 1000, is best to keep it 500 and below.

  5. Have you ever on Desferal Infusion ?

    Yes, infact that's the only chelation available at the point of time, back then I was 10 years old when I first started on Desferal Infusion, then follow by Desferal Infusion and Oral L1 Ferriprone 3 Tablets/day and lately completely taking just L1 Ferriprone.

  6. Have you undergoes Splenectomy ?

    No, my spleen is not enlarged so I do not need to get it removed.

  7. How offen do you come for Blood Transfusion ?

    I come for Blood Transfusion every four weeks on average.

  8. What is your before/pre blood transfusion hemoglobin?

    My before transfusion hemoglobin is anywhere between 8 - 9 g/dL

  9. Where to purchase Desferal Infusion Pump ?

    For purchase of Desferal Infusion Pump you can check out CANE S.R.L MEDICAL TECHOLOGY. Their website is http://www.microjet.it

  10. Which country do you live in ?

    I am living in Singapore.

  11. Which is the Best Iron Chelator ?

    There's no which is the best chelator. Every chelator have it's own benefit and disadvantages, so you have to judge by the patients condition and work out the best chelator to used for that patient. Deferasirox (Exjade) is the best chelator, if you really want me to pick one. I think it's the closes to perfection.As it benefits by getting rid of iron well both in the heart, liver and other major organs where by Deferasirox or ferrirpox are good in either one the heart or liver and maybe other major organs too.

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